I am currently sitting at my Dad's computer at my parents' house while on vacation in N.Y. I've been doing a lot of reflecting since I've been home. I live in California so I don't get home very often, maybe a vacation every few years, and I've been hit with stark reality on this trip. My mother has dementia. Her memory problems began at least five or more years ago and have worsened over the years. Every time I see her, she has deteriorated further. Not only does my mother have dementia, my uncle has alzheimer's as well. Observing my father and my aunt has been a real eye opener, and taught me what love really is.
Love is watching my aunt take care of my uncle, while keeping up their home, and caring for their baby grandson. My uncle is a stranger to us all now. He doesn't know me or my daughter. He barely remembers that my dad is his brother. He doesn't speak clearly and gets lost in conversations. He mostly sits quietly now or falls asleep. My aunt has to make sure my uncle takes his meds. She also constantly has to search for items that my uncle "finds" and misplaces. When she finds the missing objects (often in strange places) she says she has to laugh because otherwise it's too much to bear. She doesn't like to think about the future when she'll have to put my uncle into an alzheimer's care facility. She loves him too much to think about not being able to take care of him anymore. His personality, what made him unique, is fading away, and I know she misses him, but she loves him too much to let go. Yet through it all, my aunt has kept her sense of humor.
My father is my inspiration. He is seventy-three years old, has ephysema, is on oxygen, had an aortic bypass earlier this year, yet he is the one who takes care of my mother! He is 128 lbs and gets winded with the simplest activity, yet he cooks because Mom doesn't remember how. She doesn't remember how to do the things she used to do. Dad insures that Mom takes her meds because he sets them out for her and reminds her to take them. He drives her to get her hair done at the salon every Saturday because Mom can no longer drive. Mom, like my uncle, also gets lost in conversations and doesn't understand half of what you say to her. She gets confused. She blamed my daughter for stealing her makeup when she had misplaced it. She tried to apologize later but couldn't get the words out, so I said the words she fought so hard to remember and my daughter accepted them.
My mom couldn't remember the school I graduated from, even as we passed it while driving. She didn't recognize a photo of my daughter as a two year old. She doesn't remember a lot of things, even when you are talking about them. It frustrates my dad and he snaps at her when I repeat the same explanation for the sixth time. But he loves her with every fiber of his being. Tonight he gave up his seat in his recliner just so Mom could sit there because she wanted to watch TV in the den with him instead of in her recliner in the livingroom. He kissed her and told her he loved her. I think he was trying to reassure her somehow. I sat here in the same room, on the computer, and watched one of the simplest, and most poignant, expressions of love I'd ever seen from them.
Love is never giving up, even when the one you love is fading away. Dad reminds me of Noah Calhoun in The Notebook. His love for Mom is as strong, despite his own failing health. On June 3rd, 2011, my parents will celebrate their fiftieth wedding anniversary. I hope they both live to see that momentous day. I hope that my mother will even remember it. If not, my dad will remember it for her. Their marriage has been full of ups and downs, good times and bad, and they have stayed strong through it all. My mother is sixty-eight years old and is losing herself to dementia. My father is not only losing his wife to dementia, but his only brother too. If he suffers, it is in silence. He too keeps his sense of humor, even as he shakes his head and sighs. Mom put blush under her eyes. I had to explain that blush goes on the cheeks not under the eyes like concealer. Mom had put on makeup every day for as long as I can remember. It is her routine. She's just forgetting how to do it now. So when I told Dad about the makeup incident, we had a chuckle. It's better than crying.
Love endures. It is patient and forgiving. Love accepts reality without judgment and tenderly fills in the missing words when our loved ones can no longer communicate them. Love understands. No words are needed. Only the strength to carry on, one day at a time. This experience has made me appreciate my parents more than I ever have, and deepened my undersatnding of what love is. Love is a gift to be shared, for the more we share, the more love we have, and the more love we have to give.
May your lives be filled with compassion and abundant love!
thoughtful
cheerful